5 Easy Things You Can Do Today to #aim2curejm
In 2008 I was big-bellied and excited to meet the little baby girl growing inside me. I was teeter-tottering through emotions, thrilled one moment and terrified the next. When I met my little Munchkin for the first time, I instantly changed. The greatest title on my resume suddenly became mother.
12 years later I am in awe of the young woman my husband and I have raised. She is bright, beautiful, kind and also rare. Last year our daughter was diagnosed with juvenile dermatomyositis (JDM), an autoimmune disease where the immune system attacks the muscles. Friday night she had her 25th injection of chemotherapy drugs. This combined infusions of steroids, immunoglobulin, hundreds of pills in orange bottles and so many medical tests later, I confess I’m still a terrified parent, maybe even more so.
I’m a trooper, a fighter, champion… but this? This has been my greatest challenge. The video below was a difficult one to make but I share it to help raise awareness for a disease that has affected our family and many others.
February is Rare Disease Month, this week is Rare Disease Week and the 29th is Rare Disease Day. This season I’ll be raising money for Cure JM, a charity that has not only has helped our family and others who struggle with this disease but also works hard to find a cure.
Already we are overwhelmed by the support from the shooting community and I\’ll be sharing those efforts. We are so grateful for your support in any form – kind words, silent prayers, monetary donations if you can spare them and a share on social media — it all means so much.
5 Easy Ways You Can Help Us Cure JM
- Share this post with your friends and family via, email, twitter, facebook, a screenshot on your IG stories or any other way that works for you and include #aim2curejm
- Visit my Aiming to Cure JM Fundraiser and share with your friends and family on social media.
- Like & Follow CureJM on Twitter, Facebook and Instagram for updates
- Think a kind thought, well wish or say a prayer for families who suffer from this rare disease. It truly does help.
- Head on over to the landing page I created at JulieGolob.com/curejm to learn more ways you can support our cause.
I\’ve also created a special target and the Aim to Cure JDM Challenge. It\’s easy to download, print and take to the range with you. At just 23 rounds it\’s a fun way for you to get some trigger time in the name of awareness for juvenille dermatomyositis. Here\’s an awesome video by my friend Paul Carlson at Safety Solutions Academy who gives you background and walks you through the Challenge with his Smith & Wesson M&P. Watch the video and read more about it on his blog post.
Download & Print
Once again, thank you so much for reading and letting me tell you our rare disease story. We have a long road ahead of us, but with your support we hope to find a cure for JM.
