WATCH: Rare Disease Update & Giving Tuesday
Who could use a little happy news? With everything going on in the world and this crazy election, having something to celebrate is a blessing. I have an update for you on our rare disease journey with juvenile dermatomyositis and it’s making me smile.
Here are links to my first 2 videos for reference, but you can also check out my webpage dedicated to Cure JM.
Juvenile Myositis diseases are orphan diseases. They don’t get the attention and love from the medical world or drug companies. This means that we as families who struggle with JDM have to drive research and awareness forward. That’s where the Cure JM Foundation comes in. It’s a top-rated charity that not only helps find a cure but also supports families who have to deal with this disease as well.
I’ve made contributions to several medical charities over the years and Cure JM stands out. As a family, they send us messages on social media with support whenever I share infusion days. They frequently connect and offer help and guidance. They also offer webinars on the latest treatments, developments and success stories that help families. They are truly driving progress in hospitals and in Washington.
Please consider donating to the Cure JM Foundation online or by sending a check made out to Cure JM with “Coffey Family Match, Golob” in the memo. Mail to:
Cure JM
P.O. Box 45768
Baltimore, MD 21297
The best part, thanks to the generosity of the Coffey Family, is that your contribution will be matched all month through Giving Tuesday. We are so grateful to all who have been so supportive as we navigate this challenge. THANK YOU!!!!
